How is paediatric chronic fatigue syndrome/myalgic encephalomyelitis diagnosed and managed by paediatricians? An Australian Paediatric Research Network Study
Identifieur interne : 000F99 ( Main/Exploration ); précédent : 000F98; suivant : 001000How is paediatric chronic fatigue syndrome/myalgic encephalomyelitis diagnosed and managed by paediatricians? An Australian Paediatric Research Network Study
Auteurs : Sarah Knight [Australie] ; Adrienne Harvey [Australie] ; Susan Towns [Australie] ; Donald Payne [Australie] ; Lionel Lubitz [Australie] ; Kathy Rowe [Australie] ; Colette Reveley [Australie] ; Sabine Hennel [Australie] ; Harriet Hiscock [Australie] ; Adam Scheinberg [Australie]Source :
- Journal of Paediatrics and Child Health [ 1034-4810 ] ; 2014-12.
Abstract
Aim: The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis (CFS/ME) represent ongoing challenges for paediatricians. A better understanding of current approaches at a national level is important in informing where research and education could improve treatment outcomes. We aimed to examine current diagnosis and management practices for CFS/ME by Australian paediatricians. Method: An online survey was sent to members of the Australian Paediatric Research Network. The primary outcomes of interest included diagnostic criteria used, medical investigations and management practices in paediatric CFS/ME. Results: One hundred seventy‐eight (41%) of 430 eligible paediatricians responded, with 70 of the 178 (39%) reporting that they diagnose and manage CFS/ME as part of their practice. Medical investigations used for diagnosis were variable. Conditions that more than half of the paediatricians reported as commonly co‐occurring (i.e. present in >50% of cases) included somatisation disorders, anxiety, depression and fibromyalgia. There was wide variation in behavioural and pharmacological management strategies but most paediatricians commonly engaged a school teacher, physiotherapist and/or psychologist as part of their management. Conclusion: The diagnostic and management practices of paediatricians for CFS/ME within Australia vary widely. This likely reflects a paucity of paediatric‐specific guidelines, together with limited evidence to guide best practice and limited training in this area. There is a need for guidance and education for the diagnosis and management of paediatric CFS/ME in Australia.
Url:
DOI: 10.1111/jpc.12677
Affiliations:
- Australie
- Nouvelle-Galles du Sud, Victoria (État)
- Melbourne, Sydney
- Université de Melbourne, Université de Sydney
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uniqKey="Scheinberg A" first="Adam" last="Scheinberg">Adam Scheinberg</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Clinical Sciences, Murdoch Childrens Research Institute, Perth, Western Australia</wicri:regionArea><wicri:noRegion>Western Australia</wicri:noRegion></affiliation><affiliation wicri:level="4"><country xml:lang="fr">Australie</country><wicri:regionArea>Victorian Paediatric Rehabilitation Service, The University of Melbourne, Perth, Western Australia</wicri:regionArea><orgName type="university">Université de Melbourne</orgName><placeName><settlement type="city">Melbourne</settlement><region type="état">Victoria (État)</region></placeName></affiliation><affiliation wicri:level="3"><country xml:lang="fr">Australie</country><wicri:regionArea>Faculty of Medicine, Monash University, Victoria, Melbourne</wicri:regionArea><placeName><settlement type="city">Melbourne</settlement><region type="état">Victoria (État)</region></placeName></affiliation></author></analytic><monogr></monogr><series><title level="j" type="main">Journal of Paediatrics and Child Health</title><title level="j" type="alt">JOURNAL OF PAEDIATRICS AND CHILD HEALTH</title><idno type="ISSN">1034-4810</idno><idno type="eISSN">1440-1754</idno><imprint><biblScope unit="vol">50</biblScope><biblScope unit="issue">12</biblScope><biblScope unit="page" from="1000">1000</biblScope><biblScope unit="page" to="1007">1007</biblScope><biblScope unit="page-count">8</biblScope><date type="published" when="2014-12">2014-12</date></imprint><idno type="ISSN">1034-4810</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">1034-4810</idno></seriesStmt></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract">Aim: The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis (CFS/ME) represent ongoing challenges for paediatricians. A better understanding of current approaches at a national level is important in informing where research and education could improve treatment outcomes. We aimed to examine current diagnosis and management practices for CFS/ME by Australian paediatricians. Method: An online survey was sent to members of the Australian Paediatric Research Network. The primary outcomes of interest included diagnostic criteria used, medical investigations and management practices in paediatric CFS/ME. Results: One hundred seventy‐eight (41%) of 430 eligible paediatricians responded, with 70 of the 178 (39%) reporting that they diagnose and manage CFS/ME as part of their practice. Medical investigations used for diagnosis were variable. Conditions that more than half of the paediatricians reported as commonly co‐occurring (i.e. present in >50% of cases) included somatisation disorders, anxiety, depression and fibromyalgia. There was wide variation in behavioural and pharmacological management strategies but most paediatricians commonly engaged a school teacher, physiotherapist and/or psychologist as part of their management. Conclusion: The diagnostic and management practices of paediatricians for CFS/ME within Australia vary widely. This likely reflects a paucity of paediatric‐specific guidelines, together with limited evidence to guide best practice and limited training in this area. There is a need for guidance and education for the diagnosis and management of paediatric CFS/ME in Australia.</div></front></TEI><affiliations><list><country><li>Australie</li></country><region><li>Nouvelle-Galles du Sud</li><li>Victoria (État)</li></region><settlement><li>Melbourne</li><li>Sydney</li></settlement><orgName><li>Université de Melbourne</li><li>Université de Sydney</li></orgName></list><tree><country name="Australie"><noRegion><name sortKey="Knight, Sarah" sort="Knight, Sarah" uniqKey="Knight S" first="Sarah" last="Knight">Sarah Knight</name></noRegion><name sortKey="Harvey, Adrienne" sort="Harvey, Adrienne" uniqKey="Harvey A" first="Adrienne" last="Harvey">Adrienne Harvey</name><name sortKey="Harvey, Adrienne" sort="Harvey, Adrienne" uniqKey="Harvey A" first="Adrienne" last="Harvey">Adrienne Harvey</name><name sortKey="Harvey, Adrienne" sort="Harvey, Adrienne" uniqKey="Harvey A" first="Adrienne" last="Harvey">Adrienne Harvey</name><name sortKey="Hennel, Sabine" sort="Hennel, Sabine" uniqKey="Hennel S" first="Sabine" last="Hennel">Sabine Hennel</name><name sortKey="Hiscock, Harriet" sort="Hiscock, Harriet" uniqKey="Hiscock H" first="Harriet" last="Hiscock">Harriet Hiscock</name><name sortKey="Hiscock, Harriet" sort="Hiscock, Harriet" uniqKey="Hiscock H" first="Harriet" last="Hiscock">Harriet Hiscock</name><name sortKey="Hiscock, Harriet" sort="Hiscock, Harriet" uniqKey="Hiscock H" first="Harriet" last="Hiscock">Harriet Hiscock</name><name sortKey="Knight, Sarah" sort="Knight, Sarah" uniqKey="Knight S" first="Sarah" last="Knight">Sarah Knight</name><name sortKey="Knight, Sarah" sort="Knight, Sarah" uniqKey="Knight S" first="Sarah" last="Knight">Sarah Knight</name><name sortKey="Knight, Sarah" sort="Knight, Sarah" uniqKey="Knight S" first="Sarah" last="Knight">Sarah Knight</name><name sortKey="Knight, Sarah" sort="Knight, Sarah" uniqKey="Knight S" first="Sarah" last="Knight">Sarah Knight</name><name sortKey="Lubitz, Lionel" sort="Lubitz, Lionel" uniqKey="Lubitz L" first="Lionel" last="Lubitz">Lionel Lubitz</name><name sortKey="Payne, Donald" sort="Payne, Donald" uniqKey="Payne D" first="Donald" last="Payne">Donald Payne</name><name sortKey="Payne, Donald" sort="Payne, Donald" uniqKey="Payne D" first="Donald" last="Payne">Donald Payne</name><name sortKey="Reveley, Colette" sort="Reveley, Colette" uniqKey="Reveley C" first="Colette" last="Reveley">Colette Reveley</name><name sortKey="Reveley, Colette" sort="Reveley, Colette" uniqKey="Reveley C" first="Colette" last="Reveley">Colette Reveley</name><name sortKey="Rowe, Kathy" sort="Rowe, Kathy" uniqKey="Rowe K" first="Kathy" last="Rowe">Kathy Rowe</name><name sortKey="Rowe, Kathy" sort="Rowe, Kathy" uniqKey="Rowe K" first="Kathy" last="Rowe">Kathy Rowe</name><name sortKey="Scheinberg, Adam" sort="Scheinberg, Adam" uniqKey="Scheinberg A" first="Adam" last="Scheinberg">Adam Scheinberg</name><name sortKey="Scheinberg, Adam" sort="Scheinberg, Adam" uniqKey="Scheinberg A" first="Adam" last="Scheinberg">Adam Scheinberg</name><name sortKey="Scheinberg, Adam" sort="Scheinberg, Adam" uniqKey="Scheinberg A" first="Adam" last="Scheinberg">Adam Scheinberg</name><name sortKey="Towns, Susan" sort="Towns, Susan" uniqKey="Towns S" first="Susan" last="Towns">Susan Towns</name><name sortKey="Towns, Susan" sort="Towns, Susan" uniqKey="Towns S" first="Susan" last="Towns">Susan Towns</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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